The Calderdale and Kirklees Independent ME Support group raised various issues with Healthwatch Kirklees regarding diagnosis, stigma and support for people with ME.
The ME group asked Healthwatch to support them with sharing their experience with local Clinical Commissioning Groups.
What is the impact?
Approximately there are between 3000 and 5000 people in Kirklees and Calderdale who have ME or CFS.
UPDATE: November 2018
The experiences and stories we collected were sent to Greater Huddersfield and North Kirklees Clinical Commissioning Group with a request that they meet with the Kirklees and Calderdale Independent ME Support Group to discuss how services within the local area could be improved.
UPDATE: January 2018
A meeting between representatives from the ME support group for Kirklees and Calderdale and the Clinical Commissioning Group took place to discuss how patient experiences could be improved.
To view the outcomes and future actions of this meeting please click the download button on the right.
UPDATE: June 2018
Healthwatch Kirklees and a member of the ME support group met with a representative from Greater Huddersfield Clinical Commissioning Group.
UPDATE: January 2019
Meeting with Calderdale and Huddersfield NHS Foundation Trust (CHFT) – December 2018.
A representative from Healthwatch Kirklees and the ME support group met with CHFT to discuss:
How to increase awareness of ME in health care services.
Setting up a neurological conditions support group.
How to bring effective support and treatment closer to people living with ME in Kirklees and Calderdale.
Some positive ideas were discussed and actions agreed. The next meeting with CHFT and the Clinical Commissioning Group has been arranged for March 2019.